- CASE FILE
For the last several months I have had an unknown and otherwise undetectable antibody attacking my nervous system.
ABOUT THIS CASE FILE
December 11th, 2018 – Within three hours after taking the second dose of prescribed azithromycin I had an overwhelming “pins and needles” feeling on my hands and feet. I was told by the pharmacist to stop taking it and that it sounded like I was having an adverse reaction. Symptoms got worse, there was tightness around my ribcage, and my hands, feet, and overall outer extremities began to go numb. As it became more difficult to walk, I went to the emergency room. I was given a neurological exam where I had no reflexes. From there I was moved to a trauma center, where a nerve conduction study showed I had significant nerve damage in my hands and feet. At one point I was in a quadriplegic like state, where I could not move anything from the neck down. I spent six and a half weeks at the Shirley-Ryan Ability Lab to learn to regain as much function back as possible. Morris Hospital - Morris, IL, Rush University Medical – Chicago, IL, Northwestern Memorial Hospital – Chicago, IL, and the Mayo Clinic – Rochester, MN can only come up with a hypothesis, that I have an “unidentified antibody” attacking my nervous system.
When touching certain things like materials or people touching me in a certain way, it can feel like an electric shock going through my body. I’ve been through Plasmapheresis, IVIG, and steroid treatments. I’ve had a multitude of tests and blood work done. I’ve undergone two lumbar punctures and that is where they find the unidentified antibody. Autoimmune disorders, Parkinson’s, cancer, and M.S. have all been ruled out, along with numerous other well-known diagnoses.
It’s been seven months since this all began and turned my life upside down. Insurance is making this impossible for us because they are deeming everything experimental therefore denying all my insurance claims.
Symptoms include… Sensory Neuropathy, Proprioception paralysis, Sensory Ganglionopathy, Poly Neuropathy, and Severe Outer Extremity Nerve Damage, as well as an unknown antibody.