- CASE FILE
I'M REALLY NEEDING HELP IN FINDING A SOLUTION TO MINIMIZE OR ELIMINATE MY ABDOMINAL CHRONIC PAIN
ABOUT THIS CASE FILE
My painful 8 years dealing with chronic abdominal pain yet I still deal with chronic abdominal pain I continue seeing doctors, Gastroenterologist
MY journey began in November of 2010 at the age of 42 physically active doing a demanding and strenuous as well as heavy lifting of equipment on my job that takes you to physical limits repoing semi tractor's while decking a set of trucks I had to break loose the lugs on every steer wheel using a 7 foot pipe and 6 ft. Breaker , my pain started as I was using all I had to break the lugs loose
Suddenly l dropped to my knees like I had been stabbed with a throbbing and fire burning pain that wouldn't stop so gave that job away and headed home from Pennsylvania to Arkansas once home I went to the emergency room and had developed chronic abdominal pain that's consistent also had nausea, vomiting,diarrhea most noticeable symptoms. The hospital run ct scan's MRI's blood tests that showed nothing was sent to a gastroenterologist and was tested for every disorder gerd,acid reflux gastritis, diverticulitis all gi possibilities as well as endoscopy both ends .I had explained with a single finger as to the area of the pain. The GI sent me to Oaklahoma for an EUS results abnormalities in the entire pancreas told Me it is nerve and tissue damage placed on cymbalta only made this worse mentally told my GI to dangerous as a driver so GI agreed to do an exploratory surgery I seen the surgeon he's like they check your gallbladder, I'm like no tested showed 0 function returned for staple removal I said pain hasn't changed sergeon said go back and see your GI ,4 month gone by at this time my GI had no ideas placed me on creon and then zenpep a pancreas enzymes see if that would help I then was referred to a pain management specialist part of his care involved taking nerve blocks , celiac plexus, ketamine infusions and burning the main nerve to the pancreas and placed on many opioid medications fentanyl, oxycodone 30 mg 6 a day oxycontin for the next 7 years this give me good results pain was bearable. So I set out to get answers went to little rock to UMAS medical university they couldn't do nothing was then sent to Minneapolis to mayo Fairview to see the best gastroenterologist in the United states many more test's were done MRCP with secretion pancreas function ultrasound cat scan MRI the works was told chronic pancreatitis and next visit I was about the TPAIT transplant but upon returning I had lost perfectly good insurance and Medicare didn't cover it at that time, So the TPAIT wasn't offered I was sent home after waisted time and traveling 800 miles twice buy this point major depression frustration stress made it much worse for me Taken 3 years later to win SSDI and being diagnosed with PTSD as well major depression and anxiety disorder and being in pain preventing you from your lifestyle,hobbies, friends ,family not able to work So 2016 my insurance part D decided to not cover certain medications
My oxycontin had to fight for my enzymes both expensive drugs I then switched part D plans but to realized many others wouldn't cover either. So now months and years had passed by with not a clue is to what's causing this pain I decided to try one more time I was sent to Baylor university traveled twice and same test with no solid answers come my second visit seen the pancreas surgeon I figured he was going help But he's like in previous imaging you brought from 2011 I seen fatty infiltration lateral of the rectus abdominis muscle and not sure if it's a tear or an entrapped nerve and due to me being from FT.SMITH Arkansas was nothing more he could do So Here we go again this was in 2016 I wasn't convinced he was correct so come 2017 the Opiod crisis started to make things worse I had went through 6 different pharmacies and the one that allowed me in only because I was an existing customer calling ahead making sure my narcotics were in stock many times I had to forfeit pills cause wasn't enough or some excuse was given I had to go back to pain management and get another script many times this happened in 2017 thru 2018 January was my appointment and was told every one will be tapered off so as of july I have been suffering, many ER visits and hospital stays from dehydration and acute kidney injuries from to much tylenol, ibuprofen on top of malnourishment I lost 55lbs and muscle mass my BMI is 17.5 extremely low prolactin levels low and being anemic and seems no concern as of today I returned to my gastroenterologist with 34. Years experience he suggested doing more test that have been run many times before He's well maybe chrones or cancer also during the prior 2 years I have consulted 2 other gastroenterologist and other than having 4 out of 9 criteria early chronic pancreatitis is the issue for the past 7 years I had to live with In the past 2 months I'm feeling really helpless and no one willing to dig in and find the problem
With every gastroenterologist I have seen
If it wasn't for the pancreas surgeon seeing a real good cause of the pain from a Cat scan that was done in 2011 suggesting but not for sure if it's a torn muscle or an entrapped nerve just lateral of the rectus abdominis muscle in my left side just under my ribcage
As a commonly overlooked source of abdominal pain I have talked to my doctors and called many nerve specialist and not a one knows about entrapped nerves in the abdominal wall ,muscles so I figure a never specialist as well as Neuro surgeons they know nothing about entrapped nerves in the abdominal area was told pain management and injections with only 4 pain management that do injections not one will do abdominal injections with only one pain specialist that can help control the pain with medication it's a 6 month wait to get an appointment as to how long before it's shut it down and no options will be available If I could even find anyone that will do injections in my abdomen just under rib first how do I know its waisted time or that it's the correct nerve upon research most comments made about injections hardly work So why is a chronic condition such as ACNES syndrome or entrapped nerves in the abdomin so complicated to find anyone to treat As many don't consider this a problem nor has this been acknowledged as a chronic condition. Yet this was introduced in the 1800s and more recently in the United states in the 70s this needs attention and so do patients are being turned away and many are loosing the battle. I know my outlook is full of confusion and frustration . I would like to add the pain specialist that is board certified in all types of pain didn't suggest abdominal wall syndrome as a source. I was a patient for 7 years with him not once failed a screening and he told me I have your back I will do anything to help but now the laws and regulations have changed and decides to release me from pain management and prescription pain medication.
I ask why hasn't abdominal wall syndrome or entrapped nerve ever been
considered .I had also suggested on many occasions is it in my abdominal wall,muscle and told everyone what my job consisted of from day one, I feel I have been misdiagnosed and if only it had been seen correctly from my Cat scan from 2011 would I be here to tell my story?
As a result of the pain crisis I have become one that has no options left
I hope you enjoyed my story and I'm praying that someone or somehow I have caught somebody's attention
PLEASE SHARE ,COMMENT and join me as a fellow pain sufferer