- CASE FILE
I have a rare spine disease called Tarlov cysts disease. Very painful in hips, legs, feet and sacrum bone.
ABOUT THIS CASE FILE
I have Tarlov cysts disease of the spine They erode the nerves in the spine and sacrum bone. They interfere with bladder and bowels. I would like to go on your show for awareness because I'm disabled now. I wish I had the option of surgery in o7' when they found the tarlov cysts. There are two neurosurgeon Dr. they can stop the progression of the disease from doing any damage. If I had the option back in 07' to get surgery I feel I wouldn't be disabled. I have severe nerve damage, my spine is still swollen from surgery The thoracic surgery I had in April, 17th 2019 my first surgery was June 2016 three cysts around the sacrum, after surgery you are monitored for two years. Please help me share awareness so nobody has to go through the pain and become disabled.