- CASE FILE
Unexplained Tumors only on lower left side, continuously kidney/urinary infections, pain-weekness-tired all the time, losing mobility
ABOUT THIS CASE FILE
I have had medical issues since I was born I was diagnosed with beckwith syndrome at birth, My left side is bigger than my right including some organs. I have had more than 10 surgeries for tongue reduction, removing my thymus gland and got my first tumor on my pancreas at 18 the tumor was 81/2 lbs they had to remove 80% of my pancreas, spleen, gallbladder etc.. Then by my mid 20s I started getting tumors all over the lower left half of my body, that keep coming back bigger and more painful i have had surgerys to decrease the size of them but there not like normal tumors you can't tell where they begin and end when you are inside so completely removing them has been impossible. They are painful and getting bigger and I now have one on my hip, they and out of control and I'm afraid that I will end up in a wheelchair and unable to walk they are taking over my life and we don't know why I'm getting them or what can be done to stop the tumors from growing or even how to control them. Doctor's don't want to touch me for I have a high infection risk And always get an infection after surgery. And the tumors are getting so big and uncomfortable that my current surgeon (the one who has been exsizeing them) Is starting to be uncomfortable with even doing that. And if he stops helping me the tumors will completely take over and i will lose what mobility i have. I have traveled to UW in Seattle a couple times and wasn't able to find answers. I have looked into liposuction and cool therapy just to be told that it can't be done. I have been fighting this for years surgerys, infection, pain and I'm not ready to let it win it has already taken so much. and we no longer have any options left and I'm desperately looking for something anything a small hope that will change everything something that i can look to instead of the defeating sick feeling that my tumors have one.
And in the last couple of years I have had to have a hysterectomy because of something unusual on my ovaries, I have had a kidney/urinary infection for about a year straight. antibiotics do not help and there should be no reason for them not to work according to my cultures and blood work. This is my last hope for finding any answers or treatments that may work, my last hope of being able to continue to walk and have any kind of life without pain. ** please help me spread my story and help find answers for myself and anyone else who may be going through the same things