- CASE FILE
I’ve been struggling with illness most of my life. It has progressed to the point of being disabling in adulthood.
ABOUT THIS CASE FILE
I’ve struggled with health issues all of my life. I grew up on antibiotics because I always had an infection, usually ear or bladder. I was allergic to prolonged sun exposure and had many adverse reactions to foods, but didn’t recognize foods as the problem. I began to struggle with my mental health when I was 12, and soon after developed very long, heavy, painful periods. I had a partial hysterectomy at age 27 for endometriosis. Since then, my allergic type reactions have gotten progressively worse. I struggled with hormone replacement therapy, benzodiazepine dependence and withdrawal, developed SIBO, and sustained trauma. For the past several years, I’ve been experiencing disabling flares that feel flu-like, accompanied by cognitive impairment (brain fog), and many allergy symptoms. Avoiding certain foods helps, but stress is a significant trigger that I can’t seem to avoid. I’m certain I have a disease called Mast Cell Activation Syndrome. I’ve been treating it for a few months now, and the treatment helps, but I still experience disabling flares. I haven’t received a diagnosis. I’m taking cromolyn sodium, but not enough. Because no doctor will diagnose me, I can’t get access to treatments and services. I’ve gone through decades of testing, many very painful, and I’m very frustrated to have the answer right in front of me and I still can’t get the help I need. I’ve been treated for diseases I don’t have, like reactivated Epstein-Barr, and I’ve been told I’m psychosomatic. I have chronic gastritis that hasn’t been explained by anything else. My thyroid starts and stops for no apparent reason. My heparin levels are elevated. I get so sick without antihistamines, I can’t get out of bed. I have to take a first and second generation antihistamine together, or everything flares up. And I have this long, exhausting list of symptoms that I know are all related. Lyme disease and autoimmune diseases have been ruled out. I’ve successfully treated the SIBO. I’ve been struggling with this illness for so long, and so many doctors have looked at me and said I’m healthy, when I’m sitting in front of them feeling like I’m at death’s door. I believe with the proper treatments, I could make significant improvements and get my life back. I’ve lost years of my life to this disease. Please help.