- CASE FILE
11 years ago I was stricken with a life threatening illness that causes episodes of severe muscle spasms that close off my airway and more.
ABOUT THIS CASE FILE
I am desperately seeking help with this life threatening illness that often robs me of my breath and has taken my independence. Approximately, 10 years ago I was diagnosed with Paroxysmal Dystonia and Spasmodic Dysphonia with Laryngospasms. I have episodes where my upper body goes into uncontrollable spasms, especially in my throat, neck and chest, closing off my airway for as long as 50 seconds at a time. My arms will stiffen and will want to lift over my head. My head will force itself backwards causing my back to arch and often my head will tremor or bob back and forth with great force. This can go on for 15 min. to 40 min. Usually my voice deepens with vocal cord spasms causing me to stutter. This is very traumatic for me to go through and for the people around me. I am desperately seeking a cure.