- CASE FILE
constant itching, fatigue, body rashes, chills, neuropathy and extremities going numb, tachycardia and near fainting with seizure episodes
ABOUT THIS CASE FILE
One symptom, rashes and itching, has been plaguing me since I was a baby. My whole body would just break out in awful rashes and hives. Several major breakouts a year, and then lots of skin discoloration and redness in between. I have been stuggling with most other issues for almost half of my life. I was 15 when it all started, I felt awful. Shakes, dizziness, weakness. I was walked down to the nurse who called the ambulance because my HR was elevated and my BP was low. For YEARS I was just told over and over that I had anxiety, I was making it all up. Take some ativan and I would be okay. I just needed to relax. I went to therapy, I went to several cardiologists over the years. I wore month long heart monitors 4 or 5 times. my resting heat rate sits in the high 90s to 100s. I was told I had Superventricular tachycardia and atrial fibrillation. I had an ablation for the AFIB in 2016 to no avail. I am still in Afib regularly. I have been told I have mast cell activation syndrome, postural orthostatic tachycardia, dysautonomia, inappropriate sinus tachycardia. I have severe exercise intolerance. Bending down or moving around my heart rate spikes. I get out of breath and am in pain just from bending over to tie my shoes. I am constantly itchy. I scratched my legs raw the other day because I can not do anything to make the itch go away. I have been on metoprolol, cornlanor, cromolyn sodium, metformin, propanaolol, Pepcid, singulair, Claritin, Ativan, Elavil, diltiazem, benadryl trazodone and several others, Several times a week, mainly at night, I get the chills. I get dizzy, nauseous and have trouble swallowing. My whole body shakes, like a seizure. The only thing that we can do is take Ativan or trazodone to essentially knock me out or calm my muscles and make me sleep through it. I am fully awake and aware and can move around. I am so sick and tired of being sick and tired. Nothing helps. I am desperate for help! I am scared. Im always in pain. Always tired. I have attached photos of some of the skin rashes I deal with on a constant basis. My husband and I play the game of where we think my hives or rash will be each night.