- CASE FILE
5.5 years ago I was a healthy triathlete, then sudden onset of awful mystery neuropathy both feet and lower legs. Now at 48, I struggle.
ABOUT THIS CASE FILE
Over 5 years ago, I was a happy, healthy, and active 43 year old female, a wife and mother of two young daughters, when I experienced sudden onset of awful neuropathy in both feet and the outside of my lower legs. Since then, I've seen over 30 doctors and unfortunately had 3 unnecessary surgeries which made things worse (one foot/leg nerve release, and 2 spine--L5/S1 fusion and laminectomy). We've looked at auto-immune, Lyme, vitamin deficiencies, toxin exposure, nutrition, neurological, vascular, spine, etc. My bloodwork and other tests over the years appear normal. I've been in-network and out-of-network, spent an awful amount of money, tried countless treatments and lots of medications, but there hasn't been a magic answer. My diagnosis remains idiopathic small fiber neuropathy and erythromelalgia (redness). I used to be a sprint triathlete (just short distances, nothing crazy). Now, every moment of every day has been filled with burning pain and tingling from the knees down, and I've also developed constant facial pain. I'm very thankful I can still get around OK, but some nights I can barely take steps because the pain is so bad. Any form of exercise is a big challenge, and I have to limit my daily activities, because when I do too much, I pay for it. I'm worried about my future, especially if the large nerves become involved. My life as a mom has been affected the most and it breaks my heart. I sure do miss the old me.