- CASE FILE
My husband has been diagnosed with ALS, but we believe that he actually has B6 toxicity.
ABOUT THIS CASE FILE
As I understand it, ALS is a process of elimination diagnosis that can take years, but doctors who have just met my husband in the hospital are making this determination based solely on his present condition and looking at his lumbar and cervical MRI results. I believe he actually has two separate issues, one of which is B6 toxicity, which the doctors immediately dismiss. The problem is that B6 toxicity research is new because it has only been within the past decade or so that people have been overindulging energy drinks and supplements containing high percentages of B6 in the form of pyridoxine (sometimes as much as 2500% of the USRDA per serving), so the doctors are largely as yet unfamiliar. Additionally, the entire process of him going from being perfectly healthy to being bedridden with extreme muscle wasting has taken just a few months. He's 46-years-old. Last January, we went on a nine day vacation where we walked twelve miles a day, and by August, he could not even stand up. There have been a series of events leading us to this point, which I can share if someone contacts me. I feel like this would be a very useful episode for people to see as the potential to develop B6 toxicity is widely unknown, and drinks and supplements containing these dangerous doses are unregulated. We had never heard of it until we started researching what could be wrong with him, and we have since met many people online who have had similar experiences, some of them much younger and taking in much less B6 for less time than my husband did. Some of them were also given ALS diagnoses only to recover as B6 was the actual cause. The problem we are having is that the necessary treatment of B6 toxicity varies from one person to the next, and without the guidance of a medical professional, given that the doctors we have seen are unwilling to explore this logical alternative to their chosen diagnosis, we are just taking stabs in the dark. I believe that my husband could make a full recovery with the right medical help, but without it, I fear he will not make it. This is not the product of denial. This is a logical conclusion based on his history, habits, the progression of his illness, and the typicality of the progression of the B6 toxicity rebound.