- CASE FILE
Imagine your face on fire, one ear red as a tomato, short of breath and excessively sweating without a cause. That is my daily battle.
ABOUT THIS CASE FILE
I’m a 26 year old female with symptoms that are “all in my head.” I have been diagnosed with essential tremor in both hands, subclinical hypothyroidism, PMDD, history of traumatic brain injury, anxiety and TMJ. I currently take a variety of medications including inderal 120, Paxil 40, Adderall 20, Vitamin D 1000 IU, Vitamin C 1000 IU, B12 3000, thyroid med, buspirone, and tamazepam. In 02/2018, I began to experience sudden episodes of high pulse, excessive sweating, facial flushing, petechiae, neck swelling, neck pain radiating into my left shoulder, sensitive skin on my upper arms and chest (worse with alcohol or at night), ear pain, ulcers inside my mouth (lacy white in appearance) and unilateral ear redness. During this time, I began having vertical double vision and worsening headaches at night. Some days I would feel faint and get clammy after the episodes. STAT CT and MRI of the head showed only a Chiari Malformation Type 1. CMP & thyroid panel both normal. CBC showed elevated WBC of 12. Neurologist assumed it was the Chiari Malformation causing my worsening headaches and new symptoms so an appointment with neurosurgeon was next. The neurosurgeon I saw said there was absolutely no way the Malformation was causing me symptoms and to see my PCP or neurologist next. My next appointment with my neurologist was more helpful as she said it could be carcinoid syndrome. I saw my PCP the following day and a random HIAA-5 test was ordered which was of course normal (5.8) I gave up and quit pursuing tests after tests that were all normal. A year passed and I started having a nagging cough, producing sputum and difficulty swallowing. General surgeon I saw ordered an abdominal ultrasound, lab work and an upper GI series. Abdominal US showed a simple renal cyst and a gallbladder polyp. UGIS was normal. Lab work was also normal other than an elevated WBC on the CBC (14). I continue to have these attacks still to this day. 4/7 days a week I am miserable. Sometimes I can’t even tolerate a hot shower or the heat because I get so short of breath that I have to either get out of the shower and or get near the AC. I sweat every day and I am doing NOTHING when it begins. It doesn’t matter if I shower at night or in the morning, apply different deodorants, I can’t stop. This is effecting my life to the full extent and I can’t take it anymore. I need someone to read my story and help me.