- CASE FILE
I've been sick since I was 9 yrs old.I have extremely bad pain in my legs, feet from Sjogren's Neuropathy.The doctors don't know what to do.
ABOUT THIS CASE FILE
I have a few issues. It started when I was 9 yrs old, I flipped over the handlebars of my bicycle and my jaw went up into my cheek. I had 15 surgeries alone on my face. I have had my mouth wired shut for 2 months my junior year of high school, I have half of my tongue sewed to the roof of my mouth. Right now the bone transplant they did in 1992 disintegrated so I have no bone in the front part of my mouth. The Sjogren's Syndrome has rotted out my teeth, all my lower teeth are gone. I have a bridge on half of the upper teeth but the tooth that is holding the bridge in is rotted. I can't wear a denture on my upper mouth because of the no bone and the tongue sewed to the roof of my mouth. I can't afford to pay for any dental work. And my bottom dentures just don't feel right in my mouth. When I was in my mother's womb, my mother fell down the concrete stairs and it caused me to have a concussion, That was my 1st concussion. My 2nd Concussion came when I was 9 years old and flipped over the handlebars of my bicycle. The 3rd concussion was when I was at my sister's house and I fell and hit my head on her concrete poll. The 4ths concussion came when I was sitting on the toilet seat and I passed out, I hit my head on the bathroom tub woke up 3 hrs later. When I was 13 yrs old I was diagnosed with Juvenile Rheumatoid Arthritis. About 8 yrs ago the Neurologist told me I had Sjogren's Syndrome and they dated it back to when I was 13 yrs old. I have Sjogren's Syndrome, Rheumatoid Arthritis, Fibromyalgia, Sjogren's Neuropathy, Diabetes, High blood pressure, Essential Tremors, High Cholesterol, Restless Leg Syndrome, Asthma, 2 DVT's, 24/7 leg cramps, Major depression, and other things. The worst in Sjogren's Neuropathy, I have extreme pain in my legs at night that I can't sleep. I have pins and needles, lightning blots, fireworks, sensations I can't even try to describe. I started medical marijuana 5 months ago and I am up to what they give cancer patients for pain and it's not working. My nights are very bad, I counted once and out of 20 days, I had 19 hrs of sleep. The Neurologist wants me to either get a morphine pump or a spinal cord stimulator. I am a loss to what to do, I have gone so far as to asking the Neurologist to cut my feet off. My left leg is totally numb from the toes to the knee and my right leg it's totally numb from the toes to the mid-heel then from the mid-heel to the knee it's halfway numb, the only thing I can feel is pain. The sensations in my legs get so bad about 4:30 pm -6 pm and last all night and through the day they aren't as bad on some days. I have so much fatigue and my balance is shot. My memory is very bad also.