- CASE FILE
I've been misdiagnosed 10 times by 42 doctors since 2007 for what looks like seizures, but tests prove total health. I'm only 31F.
ABOUT THIS CASE FILE
When I was 19, I drove to dance practice, grabbed my socks, then woke up 2 hours later in an ambulance with my dance team asking me if I knew where I was and my coach asking me if I was on drugs. This is all I remember from my first known episode. I am now 31 and have had an "episode" approximately every 6 weeks since 2007, however, there is no known pattern, trigger, or diagnosis. Each episode varies in severity, but all include: loss of consciousness, fainting, convulsions, dizziness, nausea, and memory loss. In July 2019, my most recent episode took place at my office, in which I uncontrollably smashed my face into the concrete floor multiple times, nearly breaking my nose. Since I was 19, I have seen neurologists, allergists, psychiatrists, cardiologists, and ophthalmologists. I have been misdiagnosed with epilepsy, vasovagal syncope, supraventricular nodal reentry tachycardia, pinched optic nerve, various vitamin toxicities and deficiencies, unusual allergy responses, and some psychological diagnoses. I have taken hundreds of medical tests that have all come back negative, except the tilt table test. I have been placed on many medications that have had no effect on my episodes, but have cost my family and I a great deal of financial and emotional suffering. I'm currently taking a daily multivitamin and an otc allergy medicine before I go to work at the clinic, in hopes that I might help others more than I can help myself. I start each day with an open mind and a scared heart, never knowing if I'll survive my next episode. Please help me.