- CASE FILE
Idiopathic Granulomatous Mastitis started abruptly at age 41. Two years later it is now attacking my other breast.
ABOUT THIS CASE FILE
Woke up to a golf-ball sized mass with fever and chills to my left, lateral breast on December 22, 2017. Was started on antibiotics by my primary doctor for mastitis, but did not respond. Later the ED started me on two more antibiotics, which did nothing so I was admitted for IV antibiotics, but had no response to them either. I was eventually diagnosed with idiopathic Granulomatous mastitis after biopsy, and so grateful it wasn’t Inflammatory Breast Cancer, which is what I was told to have in the ER. I developed Reactive arthritis and erythema nodosum suddenly when I awoke to swollen feet and ankles, which thankfully only lasted a couple of weeks. Failed two trials of high-dose steroids and developed severe anxiety. The breast continued to feel hard and randomly blister and burst. Went into remission in March of 2019. Suddenly developed pain to the unaffected right breast 6 days ago (September 6, 2019) with subsequent inflammation, erythema and pain. Many women in my support group have been identified to have a bacteria through 16S RNA testing, which my hospital has not done although I have requested it several times. Mayo Clinic also denied to see me since I was already going into remission back in March. I cannot imagine living the rest of my life with this awful condition. All I want to make sure of is I don’t have Corynebacterium kroppenstedtii, that can be treated with doxycycline. I’m a Family Nurse Practitioner who has been unable to work. Please help!