- CASE FILE
Unbearable/unmanageable pain in all major tendons/joints, no visible inflammation but lots of fluid in small spaces. No diagnosis yet!
ABOUT THIS CASE FILE
I just want to live my life with my 8 year old daughter! I have crippling bilateral hand pain and stiffness, unable to hold objects, I can barley brush my own hair or use a tooth brush. Bilateral ring finger stiffness, both fingers are stuck in a curved shape. Crackling/popping feeling when fingers try to bend. Sharp, stabbing pain in wrists, feeling of tightness, and tendon swelling on both tendons closest to the thumbs. Neither wrist will bend, unable to hold my own weight and bring myself to the sitting or standing position. Right knee is completely filled with inflammation that I have loss the ability to use it, except for short distance walking. Both feet ache badly at night, and the outer tendon that wraps from ankle to the bottom of the foot cause sharp stabbing pains. Near both ankles I have some edema and a hard lump that is beginning to form on my right foot near the ankle bone. I am a very active, 32 year old female, I hike, bike, and workout at the gym. I have drastically changed my diet to fit my un-diagnosed disease. Nothing processed, no dairy or sugars, and no night shades. I drink plenty of water, and watch my weight and monitor my heart rate which is always in range from 108/70-112/70. I have seen a Primary care doctor, a Neurologist, Orthopedics, A highly recommended Rheumatologist, Chiropractors and most recently I am under the care of a Naturopathic Doctor . I have had and EMG done, MRI's, X-Rays, and more blood work then I can count with not on single marker to indicate disease of any sort, I have started PT so I can gain motion in my shoulders again. The pain really sets in if I stop moving for long periods of time and I have some sort of "Hyper-stimulation" according to my PT. in all muscles in the body. I also feel as though my arms and hands swell at night as if filling with fluid, but no visible inflammation can be seen. Recently I was put onto Prednisone 10 mg once a day for two weeks to see if it would help with any pain, which it did minimally for the first week. It was at this time the Rheumatologist decided to put me on Plaquinel 200mg twice a day. I followed with the instructions and began to see horrible side effects, we dropped my dose to 1 pill a day and I was able to maintain this for one month, still seeing minimal side effects and no relief I continued with the regimen. At month 2 we went ahead and increased my dose to two pills a day again and that is when my face began to break out, and my hair began to fall out and still no sign of relief, so my Rhuematologist decided to take me off. Back to the drawing board and another set of blood work was done, all still remaining negative and no answers still. I need some help, I have fallen into a state of depression that has taken its toll as well on my body. Nothing seems to alleviate the pain, which I have tried all over the counter inflammatory's along with all RX. I have tried CBD oils and non steroidal creams, DMSO and am now on a plethora of natural food supplements. To just have the ability to use my hands again would be a huge goal for myself. Please help me find not just a cure but even a diagnosis would give some insight on what to do next.