- CASE FILE
I am 29 and have struggled with being undiagnosed and misdiagnosed my whole life. I have basically stayed in pain, discomfort, and stressed.
ABOUT THIS CASE FILE
My many diagnosises started with a calcium deficiency when I was a kid. I began to get lightheaded and dizzy and started to faint. I took a supplement for it for awhile that seemed to have leveled it out. My levels seem to be staying in the normal range now. I was also diagnosed with 2 calcifications in my head that I was told after a few years had dissolved. I was then diagnosed with hypothyroidism and put on medication for a few years and then told it was balanced out and I did not need the medication anymore. When it was retested recently, I was told it is low again. Then I was diagnosed with Addison's Disease (there were questions whether or not it was secondary or primary) and they had me try supplements to try to avoid prescriptions for awhile, until it got too bad several years later and they had me start taking medicine for it. One test showed a cyst on my adrenal glands, but the next time it was tested did not show it. I have multiple vitamin deficiencies (D, B, K, Iron, Iodine, etc). I was also diagnosed with a partial collapse in small intestines and gastroparesis, along with a hiatal hernia. I also have pancreatitis. I have a history of kidney stones and UTIs. I was recently diagnosed with a collapsed bladder. I also just had a HIDA scan that showed my gallbladder function at 0% so am probably about to have surgery to have it removed. I had a bad reaction to a medication that caused either a stroke or similar to it. I have a history of severe hypokalemia and take potassium supplements for it. I have been admitted to the hospital numerous times for it dropping too low. After the stroke, I was also diagnosed with carotid artery disease, internal arterial stenosis, seizures, poor blood flow on the left side of brain, and high blood pressure/pulse. I was put on two different medications for my blood pressure and pulse. I was diagnosed with diabetes and was put on medication for that as well. I have osteoporosis and that combined with weak muscles caused me to fall a few times resulting in spine, rib, and pelvic fractures in which I am still recovering from. I have avascular necrosis in my hip bones they said is currently mild enough to just keep an eye on to make sure it doesn't get worse. I have a partially collapsed lung that I was told there is not much I can do about. I have hemmoraging ovarian cysts that I was told there isn't anything I can do about besides watch for warning signs of them rupturing. My menstrual cycle stopped about a year ago and no one has been able to figure out why, but I have had some severe pains around where my ovaries are that they also can not figure out. I have high estrogen and low progesterone. I was diagnosed with fibrocystic breasts that they missed for years, but since I have had the problem for years they decided to just monitor it as long as they do not cause me too much pain or problems. I have struggled with severe hemorrhoids for a few years now and am still in debate over whether or not to have the surgery to have them removed since they can potentially just come back. I have frequent fluid retention that comes and goes in multiple places and have had issues with ankle and feet swelling so bad at times to the point where my socks and shoes stopped fitting. I have constant pain in my legs and arms that I am told is nerve pain and was put on medication for that. I live with chest pains that cause short of breath that no one has been able to figure out. My teeth have rapidly gotten brittle and bad and crack and break easily now. My hair started falling out in chunks and is barely there anymore. My skin has thinned out also. I bruise extremely easily now. When I have to get an IV or blood drawn, they have trouble finding my veins when they have never had a problem in the past and sometimes they can not even get the blood out. It also sometimes stings/burns VERY badly when I get IVs of anything and I did not have that problem before my stroke. They have not been able to figure out why that suddenly started either. I have a bump on my forehead that keeps growing that we do not know what it is. I basically live in constant pain and worry from not knowing what all of these problems are and it just causes anxiety and more problems. My mother had some of my same problems, so was trying to help me find answers until she suddenly passed away unexpectedly in January and we never found out why. She was caring for me, but once she passed I was forced into a nursing facility since I can not currently care for myself. It is very difficult living somewhere like this and having to rely on people for everything at only 29 years old after being independent previously. I would really just like some relief and help and answers so I can recover and be able to care for myself again and try to have as best of a life as I can!