- CASE FILE
Life changed after virus in 2013 while living in Hawaii. Dr’s say I'm a mystery patient.I just want to be who I was.
ABOUT THIS CASE FILE
Where to begin? I was active and seeking a new career. As an intern in the culinary world I had been in Hawaii. I had gotten really sick with a virus after being there for a few months. I was terribly sick but refused to go to the ER. I never felt like i was better. Always exhausted. My muscles would cramp and hurt. If i sat down i would struggle with standing back up. Then i started to have what i know now as Aura’s and painful headaches. I moved back to PA with encouragement from my PCP do to needing medical care and answers.
I currently see a PCP, neurologist, gastroenterologist, and neuropsychiatris.
I have a list of symptoms
Chronic Migraines w Aura
Type 2 Diabetes
Non epileptic seizures
I take medications
OTC allergy meds
Things that were considered was ALS, MS, and Lupus. However all test hv been negative.
At the current time its unsure if i have undifferentiated connective tissue disorder. Since my mother and grandmother both suffered from Lupus. Still no evidence in lab work that this is the problem. I had a muscle biopsy and that showed some myofibers but neuromuscular said inconclusive. Have never had genetic testing.
My everyday consists of me doing minimal activity. If i do too much my muscles pretty much shut down. My everyday headaches make it difficult to think or function for that matter. Im a44 year old grandma and i want my life back. Im done with living this way with no answers. I just want answers. I have an extensive medical history since 2013. Was never ill before that.