- CASE FILE
I have been having health issues since I was 13 without relief, I am now 45 but feel like I am 75, I am frustrated, Please help!
ABOUT THIS CASE FILE
I am 45 and use to play sports, and be as active as possible and now I go through most days feeling sick, and have absolutely no energy. I was diagnosed with a high ANA, and unspecified angioedema, fibromyalgia, IBS, connective tissue disease, sinusitis, joint pain & have itching on places that can't be explained. . I & my parents have spent thousands of dollars on doctors and medications that have not worked. I went to UCSD and meet with Dr. Marc Riedl Of the HAE institute.I was put on 4 zyrtec and 1 singulair to control swelling and help with anaphylaxis. I have a epi pen and carry prednisone for bad attacks. I did some of my own research and talked to Dr. Riedl about possibly having a Mast Cell disorder, so he put me on Cromolyn which has been a game changer in some ways. I have gone from taking 4 zyrtec and 1 singulair a day to 1 Zyrtec a day with 100% no swelling and my GI issues are a bit better but not gone. Here is the interesting part I have not come up positive on a mast cell test, but the med's are working. I'm not sure what is going on with the joint and muscle aches, and Itching and why this is all happening and it getting worse as I'm getting older. Every morning I have diarrhoea and purge everything I ate from the day before, and some days I just feel nauseated all day long, I am 45 and I not sure how much more of this I can take. Please help, I am frustrated, and over doctors who can't figure things out and then ask me if I am depressed. I wish it was that simple, but this is by no way all in my head. Dr. Riedl is one of the very few who have been amazing on trying to help. I just want to get a down to how this is all connected or if it is and how to treat what's going on so I can get some sleep and releaf.