- CASE FILE
51 different diagnoses, 32 different medications, Went from Healthy to Wheelchair within 4 years and doctors STILL have nothing definitive!
ABOUT THIS CASE FILE
It started like 6 years ago 1 Christmas with swelling in my left leg and foot which continued to get worse and my teeth started breaking off into little pieces and becoming loose for no reason, then I started having just an overall sick feeling with fatigue and flu-like symptoms. This then progressed to finding out I was already in stage 3 moderate kidney failure I am now in stage 4 moderate kidney failure with at this time around a 40% kidney function with function of my right kidney majorly decreased due too that is deformed. I started with my primary doctor and then started the journey to being sent to numerous specialist because symptoms just started going crazy my blood pressure was uncontrollable and high and I started having issues with my gallbladder which is taken out I then started having issues with my magnesium and my vitamin D levels being severely severely low and then the swelling started in both legs horribly!! And the pain in my lower back and legs started to get unbearable! I then went for my first mammogram and they seen something in a lymph node under my left arm that required a biopsy which the doctor prepared me for it being lymphoma! He said he was like 99% sure it was lymphoma! it WAS NOT lymphoma instead it came back that I have igG4 AUTOIMMUNE disease and that it was very rare and I was like the first person in Indiana to have this diagnosis! But there are absolutely NO doctors in my area AT ALL who know anything about this igG4! So my town had a benefit for me so i could go too Atlanta GA too a doctor who specializes in this igG4! Well she was totally convinced that i did have it because my swelling was down the day i seen her because i go through acute phase where i am so swollen i can't walk at all then it will go down for maybe 5 day a month if I'm lucky! So she ordered a PET scan that was done in Indiana and it came back i had "hotspots" that showed up on this scan but no one did Anything about this! I am now in Stage 4 chronic kidney failure with my function around 21-25% depending on the day! I suffer from severe pain in my lower back that's mainly from my kidneys and the swelling is so bad it just puts so much on my body! i have gained so much weight and i barely eat! I have to go and get magnesium infusions along with taking massive doses of oral magnesium! I am on 32 different medications and also have an inteenal pain pump which does not touch my pain! I have so much joint pain, bone pain. And pain just everywhere i am suffering so much! I also have a port in my upper left side of my chest because I have like no veins for IVs! I'm always feeling horrible and I also always have a bladder or kidney infection but I am resistant to almost all in antibiotics that are oral due to my allergies and the fact that they are resistant so they just don't even treat my UTI anymore or my kidney infections anymore! I have 53 DIAGNOSIS on my diagnoses list!!! And I am on 32 MEDICATIONS!! it's almost like my doctors have lost interest in finding out exactly what is wrong with me, they just add another diagnosis at me, or medicine! I went from being very active loving life, working, having a family, and I am now my husband who took such good care of me divorced me out of no where because he said he couldn't sit and watch me die any longer!! I I am now living in an apartment building that is for people with disabilities and illnesses, and I have a care assistant 3 days a week for 6 hours a day that's here with me to help me with daily living! I now have too use a wheelchair when i am out for ambulation, and i rarely leave unless its for an appointment! There is just so much more its hard too put in words! I will say I want A life back!! I NEED some answers too help me or I will die! Without a doubt!! I want off the merry go round of doctors who keep adding this and that and have someone care enough too figure out this puzzle and what is auctaly wrong with me! Id give anything too be able too decrease my pain and suffering and just be able too take a short walk again, or go too the movies, spend time with my family just the simple things in life!! This show has given me hope! And i hope you would consider my case! Thank You for taking the time too read this! But this is just a small version! The long version would take me hours too type! But i absolutely need help!! I need too know if i truly have igG4 or another AUTOIMMUNE disease or if its its something else!!