- CASE FILE
I am 31 y/o on disability 5 yrs w/ debilitating & at times life-threatening symptoms. Please! HELP me where Drs have failed to find my cure!
ABOUT THIS CASE FILE
I was diagnosed with Lyme disease from a tick bite in 2009. I have active EBV virus every time I’m tested. I have Post Lyme Disease Syndrome. The Lyme damaged my immune system to make my body attack itself, and that’s caused Avascular Necrosis in my bones at my major joints which will likely all need replaced. I had a 2x hip replacement in 2014, and they said I will most likely need my shoulders and knees done soon as well.
But the most debilitating part of PLSD is the angioedema-like disease processes ravaging my body causing swelling on every skin surface and organs like my lungs, throat, and other airway organs that cause serious difficulties breathing. Sometimes my diaphragm will swell causing difficulty breathing while putting pressure on my heart which causes me to go into an arrhythmia called SVT where my heart rate gets up into the 170s-200s along with seriously high blood pressure. When this happens I need to get to an ER ASAP because your heart can only take so much stress, and it doesn’t stop on its own. I need medication only ERs can give to stop my heart to shock it back into rhythm.
I am in pain every single day, and I’m only 31 years old with a full life ahead of me, and I don’t want that life to be in this jail cell I call home.