- CASE FILE
Rare autoimmune disease with no known cure by the name of Bechets Syndrome. Only about 3,000 cases known in the USA.
ABOUT THIS CASE FILE
About four years ago I was diagnosed with a rare disease by the name of Behcet’s Syndrome. When I began feeling the symptoms of Severe autoimmune flare ups that would have me spend a lot in the hospital. Doctors of every profession came in attempt to figure out why this was happening to me but my never before seen symptoms only left them stumped. This horrible disease causes ulcers the size of quarters to appear in my mouth, organs, and my private areas. Along with the ulcers I feel immense body aches, severe head aches, abnormal body temperatures, and much more. I recall the day like it was yesterday when I was finally diagnosed with this torture and told that there was no known cure known worldwide. From that day my life only turned for the worse, I lost my job as my body would not keep up with the tasks needed to be done even causing a sudden seizure which left doctors stumped not knowing what could have triggered it to this very day. I can not spend too much in a Public scenery without the fear of catching something even as minor as a cold as the Syndrome would only worsen it. I have had to give up on many everyday things and activities because of this and it saddens me. Every visit to a doctor would be the same answer of “there is not much we can do. Here try this medication and tell me how you feel after a few weeks,” is what they would tell me. This is a constant pain and discomfort felt all over my body that I have to live with for the rest of my life. I’ve taken pills of all sorts that aren’t for this disease in attempt to see if they could possibly slow the process of the flare up but to no avail. The current move the doctors have taken it to receive monthly infusions but so far it does not seem to be helping. My main reason for seeking help is purely for the reason to find a cure for this hell that I am living with. I want others to be aware of this disease that has very little people in the United States in pain with no safe haven to escape to. I’m hoping with all my might that something can be done for this, for people to learn of it and for doctors to seek a cure in the near future.