- CASE FILE
Graves Disease, Hypoparathyroidism, Crohns (prednisone treatment not working), Chronic diarrhea, Chronic Pelvic pain, no answers! No hope!
ABOUT THIS CASE FILE
I am 39, was diagnosed with Graves when I was 13, had a total thyroidectomy at 19 with resulting traumatized parathyroid glands. This resulted in my body no longer being able to make calcium/magnesium and then the crazy gut wars began. Depending on absorption I would have loose stool or constipation, and terrible pain. This has gone on throughout my life.
Here we are now, and I have finally gotten an endoscopy and colonoscopy and they found h. pylori (for which I have recently finished treatment) and possible Crohns. No relief since H. pylori treatment, and I'm on prednisone now to help with Crohns and I am not thriving. Constant diarrhea, bad stomach pain, pelvic pain, and very little appetite. I cannot eat without pain afterwards. And I'm so tired you could knock me over with a feather.
I need to work, and I'm luck my boss allows me some leeway in terms of getting in late, or leaving for appointments. I'm a mom of two young girls and step-kids as well. I have more tests starting with contrast iv/barium drink CT scan next week and who knows what else. Everyone is throwing their hands up because there have been no solutions, work-arounds, or even temporary reprieves.
The frustration and hardship of it all is felt by everyone in the family no matter how much I try to keep it all in. I wish I had answers for you and for any person that is suffering in this way. It is a lifetime of being on a rollercoaster of "what is it today" symptoms. And there is not much support available. We have to be advocates for our own health and no one is watching. They are just waiting to throw prescriptions at symptoms, as opposed to hunting down the true source of these autoimmune life suckers.