- CASE FILE
Since 10/17, I'm losing the use of my arms and legs, constant pain and fatigue. I have neuro, muscular, cardio, and endocrine issues.
ABOUT THIS CASE FILE
My name is Cassie. I'm a married mom of three girls and a special education teacher in a city school district working with children with Autism. In 10/2017, I became sick and had my gallbladder removed due to sludge in the gallbladder. My recovery from this surgery was long and hard. By 11/2017, I was experiencing signification pain and cardiovascular issues (rapid heart rate, dizziness, and Pre-syncope). My primary care physician referred my to a gastroenterologist and a cardiologist to begin looking into my pain and heart issues. The gastro determined that there were no underlying gastrological issues. My cardiologist diagnosed me with IST (Inappropriate Sinus Tachycardia) and possible POTS (Postural orthostatic tachycardia syndrome). I was put on beta blockers to try to combat the heart issue. I was also on a migraine medicine to combat chronic daily migraines. My symptoms continued and I continued developing new symptoms. I found that I was having a hard time walking up and down stairs and using my right arm to stir food, brush hair, write and clean. I scheduled a follow up appointment with my primary care physician who realized that I was experiencing a marked decrease in my right arm and leg use. I was referred to a neurologist and an orthopedic specialist to see if they could figure out the cause of my symptoms. The symptoms continued increasing and no help was found. We went to Cleveland Clinic to work with a team up there. They were able to confirm the diagnosis of POTS but were unable to figure out what is going on with me. My symptoms continued growing and I'm now experiencing significant weakness in my arms and legs on both sides, muscle spasms, terrible pain in my bones, joints and muscles, tremors, visual disturbances (everything looks like I'm rocking up and down on a boat), daily hives, chronic daily migraines, numbness and burning in my feet, locking up of my joints with use or after sitting, insomnia, shortness of breath, light sensitivity, cold intolerance, and brain fog. I now use a cane in order to walk but still have to hold onto objects to maintain my balance and strength. I'm only able to stand unsupported for a couple minutes before my legs won't support me anymore. I have been tested for and have negative test results for Lyme disease, rheumatological conditions (lupus, rheumatoid arthritis, etc). I had a muscle biopsy to look for mitochondrial disease but the results came back in non-specific. I've just discussed with my school where I teach that I'm going to have to step away from teaching and take a medical leave of absence. This illness is destroying my life and taking all of my joy and I feel like there is no hope for answers.