- CASE FILE
I was diagnosed with idiopathic transverse myelitis, which is inflammation of the spinal cord, in June of 2015.
ABOUT THIS CASE FILE
My condition is extremely rare and causes damage to the myelin sheath covering the nerves. Cannot walk due to muscle weakness. Severe nerve pain in lower body, abnormal skin sensations, such as pins and needles, burning, and stinging. No bladder or bowel control. I'm told there is no treatment or cure. Bedridden, though I can move my legs. My condition was not recognized above, nor was my main issue, severe nerve pain. This site also doesn't recognise my actual diagnosis so I chose one that seems similar. My HMO has no therapies to offer me and they won't refer me to outside therapy. The only thing they provide me is meds to try and manage the unspeakable nerve pain. It feels like I'm being dragged naked behind a car on the freeway. Electric jolts, sparks, and spasms. I just want to die. Now, my doctor is wanting to cut back my pain meds. Please, someone help me.