- CASE FILE
I was diagnosed with Lupus SLE at 13y/o in 2007. In 2015 I had irreversible nerve damage in my legs/feet with no answers or fixes. Suffering
ABOUT THIS CASE FILE
At 13 years old I was diagnosed with lupus. I’ve managed to fight through every battle it’s given me. However, in 2015, I some how cause myself irreversible nerve damage. I spent over a month at Northwestern Memorial hospital in Chicago, with tests, IVIG, cell transfusions, anything they could do for me. With no answers. I lost all feeling from the knees down, and only felt pain for about 6 months. Eventually I started feeling my legs to touch again, but my feet never came back. I’ve since then, lived with pins and needles, spasms, burning, and the worst pains for 4 years now. I tried getting tarsal Tunnel surgery in Feb 2019, and it made matters worse.... I now lost complete feeling in my left calf again. With no sign of returning. I can’t walk on sand anymore, my feet are red with sores all over them. I can barely walk without socks. I am looking for any answers. The bottoms of my feet represent what looks like “chilblains lupus” but doesn’t explain the numbness or neuropathy. My feet are starting to become untouchable at this point. I’m 3 months pregnant and I’m terrified how much this will later things once I have a newborn or toddler who doesn’t understand why he can’t step on mommy’s toes, or touch my legs or feet.