- CASE FILE
It's my 3 daughters and I. We are having bone & joint degeneration as well as arthritis & what I have to assume is female hormone problems?
ABOUT THIS CASE FILE
I wish I could just say that it is myself who only suffers but it's also my 3 daughters. Also found out my mother and her mother had gone undiagnosed
As quick & brief as I can we are suffering from bone & joint deterioration as well as mystery ailments with our monthly periods. I'm not sure if they are connected but I have to think if everyone else feels almost the exact things, then it might be?
My pain started at 10yrs old when my back "went out" putting sheets on my bed. It moved onto strange but undetectable joint pains, now to actual bone destruction. Right now they cannot pin anything to me yet.
I have symptoms of psoriatic arthritis w/o psoriasis, degenerative disc & joint disease, degenerative osteoarthritis but not osteoporosis. Also Stenosis in my neck , multiple neuropathy & myopathy. Many of my facet areas are gone and replaced with arthritis.
All of my teeth had to be pulled out from what I'm assuming is the same thing that's eating my bones.
One day, about a year after a major sweat attack, full torso rash & very fast weight gain, my teeth just started to break. I could eat a piece of bread and a tooth would break. I've always had soft teeth.
My dentures don't fit so I rarely wear them. Because of that I cannot eat anything except spoon fulls of peanut butter or something
They've found other high auto immune markers w/o any way to identify what's causing it.
I've been checked for a few illnesses but nothing definitive has been found.
For this I am on 45mg morphine 3x's a day, a max of 6 percocet 10-325 a day along with a muscle relaxer. I also self inject Orencia 125mg Once a week to slow down joint destruction & Aimovig for my migraines. I'm also on my 2nd neurostimulator. Plus I have to constantly use nasal spray because my nose feels like its swollen shut.
I have also been absolutely suffering from these terrible sweating fists that are ruining my life. I will pour sweat, not just a little brow sweat, I will sweat like I've been working construction in the sun on a humid 120° day.
Its embarrassing & I'm miserable. Nobody can figure it out. I sweat as soon as I get out of the shower too. I have to change clothes a few times a day.
If I cant move because of my pain, I wont move because of the sweat.
This sweating started with just my period and only a couple days a month. When I turned 40 the sweating became intense. I got a rash on my entire torso that my doctor at that time said it was heat rash, but it took a few months to clear up.
A couple months after this torso rash, I gained 60lbs almost overnight. No matter what I did, the weight never left. I was even given prescription weight loss pills that only made me tired.
I've always been fit in the past. Now I cant work out because of my pain.
I went from 135lb average weight to 197lbs in just 6 months.
I was told I was in menopause but still get my period on time every month. It, my period, was gone for an entire year. I took estrogen for exactly 1 week and 1 week after stopping the estrogen my period came back like it never left.
My hormone markers will sometimes say I'm in menopause sometimes not.
I have noticed that I get hives all over my face when I'm ovulating every month. As well as my sinuses swelling & my ears itch. Seems my asthma gets a little worse too.
Now my children, all girls, have been suffering the same exact physical joint pain & destruction. I tried and tried and tried to get their doctors to listen to me, but they would chalk everything up to "growing pains" instead of getting better they get worse.
I take them to the doctor, the doctor says "let's wait and see" .
My oldest daughter (24) has lower back arthritis that because of insurance, we couldnt follow up on. She also has bad knees, hips & elbows. As well as soft teeth
Daughter #2 (17) has elbow, hip and now ankle problems. It was just discovered she has bone degeneration in her ankle. Tomorrow we go for the MRI. She has soft teeth.
Daughter #3 (15) has been diagnosed with Osgood Schlatter (?) Syndrome. Of course the doctor isnt concerned. She is also having low back pain. And once in a while elbow pain. Soft teeth
Today I found out that my mother has joint/tendon destruction and her mother had arthritis "everywhere" which was about all I could get from her.
My mother also had soft teeth. Any other conditions I'm not sure of.
We have also noticed that we have what I call "adrenaline attacks" out of the blue our hearts will race, we get shaky & dizzy. Like how it feels when you almost get into a car accident. Or if you drank 5 pots of super caffeinated coffee.
We do suffer from anxiety attacks, but the "adrenaline attacks" are different. They are scary because there is no cause.
My daughters also are dealing with weird "hot flashes" and heavy sweating during ovulation. I did ask if it was like a little light sweat, but they say its heavy enough to sometimes have to change clothes. And sweating after the shower.
I hope I covered it well enough. I just want my girls to have a good life & not suffer like I do.
Even tho I've told their doctors what feels like a thousand times about what I'm going through & how I want them to be ok, I'm considered a "worried mom" or even called " munchausen by proxy" .
I also want to figure out possibly what I have been living with all these years so I dont have to take buckets of pills all the time & know that I will live past 50 years old.
I'm still young, I'm a new grandma, i want to spend time with them. Right now i can barely leave my house. I'm so hot & sweaty that my grandson dont like me to hold him.
Its embarrassing, I'm in severe pain even tho I'm on the pain meds & i feel like I'm not going to be alive much longer. I'm scared. I feel like I'm dieing.
I really hope you can help. The doctors here just wont help me. They have their minds set and wont go further. Even tho i tell them "i just want to be as healthy as I can" right now everything seems like maintenance.
I'm sure I may have forgotten something. Lately my attention span is small & so is my memory. Ive been taking brain enhancing vitamins
Thank you so much for taking the time to read this. I honestly dont care about the TV part, i just want to get help & help my girls live as healthy as possible.
Thank you for making a show like this to help people like my daughters & I