- CASE FILE
TMJ DYSTONIA Seizures Preventing me from Performing and Ministering Hospice
ABOUT THIS CASE FILE
I'm an ordained minister, songwriter-journalist. Before my devastating neurological condition,,DYSTONIA,(from a mercury amalgam filling improperly removed), I was an in-demand performer-a songwriter before 2007 performing and speaking all over New jersey. I recorded music with my band, spoke at women's centers and nursing homes sharing the Gospel. I was diagnosed withh Lyme Disease (1992) . I almost died from carbon monoxide poisoning in 1997 followed by debilitating fatigue clinical depression and Candid. In 2007, my husband insisted we remove all mercury fillings and went to a local dentist. She did NOT use the special protocol and rubber dam); Very soon after, my SCM and Platysma muscles started to pull on my jaw joints and within two years, my jaw joints were dislocated. I started to get excruciating pain the my jaw joints and my teeth alignment went out of alignment. I often bit my tongue so hard, I almost passed out from the pain and I'd bleed all over the place! After seeing countless c primary care MDs,chiropractors (including atlas orthogonal) neurologists, several dentists, an acupuncturist and even an environmental MD, we were told I had to have jaw surgery., My suffering has been unspeakable, becoming housebound an isolated from pope. I am EMF sensitive and bright lights , excessive stimuli at one time exhausts me. I can't tolerate being in grocery stores because of florescent lights. The last year, my symptoms have progressed to the point that now it is VERY uncomfortable to play my guitar and sing, because my my eyes close . The jaw and throat spasms also seriously affect my sleep and I must take 2 ibuprofen, 6 sleep capsules, GABA &magnesium powder to get a decent nights sleep. Before the Dystonia, I never needed anything to make me sleep. The discomfort is so affecting that each day I struggle to keep positive & even to stay focused on my tasks because my jaw consonantly opens and closes. When I go out to the library or grocery store, people notice the twitching and jerking and stare as if I'm a drug-addict or freak. (I never touched a drug)! The jerking and twitching drain me and by mid-day, I am exhausted from the uncontrollably movements. It is difficult to enjoy anything because my teeth are grinding. my 2 back molars are worn down from grinding on my acrylic mouthpiece which was supposed to realign my jaw position. The Dystonia and Jaw treatments (with countless specialists and other practitioners) have totaled over 8 thousand in less than a year! The past year, the throat seizures wake me up several times during the night and are very uncomfortable. Often, I dread waking up because the pulling of my neck and throat is so strong, I cannot breath. I've been desperately searching for a cure the past several years after all my doctors and the dentists we've seen act as if my case is hopeless. I'm part of the Facebook Dystonia group and see many are suffering unspeakably.