We know what's wrong it started in 2011 but was missed in an MRI, now that it has been found 2018 we can't get help for it. My daughter as amazing as she is, with a great attitude has pretty much given up on pain free life. To know her is to love her and I feel as if she is slipping away. She is getting worse and the Drs. will never t get on the same page. The time it has taken just to get the tumor found and to still have no end, or answer.