- CASE FILE
Howdy all! My name is charlie, I am a 20 year old trans guy who has been chronically ill the majority of my life.
ABOUT THIS CASE FILE
*Birth*- 27 week triplet (fraternal), 2lbs 2oz. countless blood transfusions, ventilated at birth, low apgars, 1+ brain bleed- self resolved, Patent ductus arteriosus (PDA)- heart didn't close up as fast as it should've- no surgery/ medicated, Chronic lung disease, Retinopathy of prematurity (ROP)- lead to eye surgery on left eye- been wearing glassing since 6 months old, Speech therapy- couldn't suck, swallow or breath by myself- NICU 1 month old-10 years old, OT/PT- tight muscles, Botox injections in fore feet and calves- AFO boots and bebax shoes worn from 3-7 years old (original diagnosis: Cerebral palsy), Nercotizing entercolits (NEC)- no surgery- weight loss- incomplete bowl shut down, sleep apnea, cardiac arrest *age 6-current* Depression, anxiety, PTSD *age 10* fractured radius and ulna- left arm, started period (I was fairly healthy and active at this point of my life). *age 13- current* fibromyalgia, chronic fatigue, Chronic nausea, chronic migraines with variant headaches ^side note: started therapy and came out at 14 as transgender^. *age 14-19* Amplified pain syndrome+ RAPS program, Bio feedback, migraine study+Botox in forehead, food allergy: whole egg and cow's milk, ^started Testosterone 04/03/2017^. *age 20/current diagnosis* Secondary polycythemia, Heart murmur, endometriosis, chronic pain, IBS, Chronic nausea-no vomiting, gender dysphoria, chronic migraines with variant headaches and occasional jaw lock, chronic fatigue. *Surgeries* ROP laser eye surgery: 6 months old: been wearing glasses since; currently, I have very healthy eyes, Colonoscopy: age 10(ish): IBS, Wisdom teeth removal: 2014: all four wisdom teeth, Tonsillectomy: 2016: tonsil stones. *Treatments* RAPS at Children's Mercy in Kansas City, Missouri: age 14-19: got rid of some allodynia on majority of body: did not help with pain.