- CASE FILE
Help, No Quality of Life! Multiple Granulomas Extreme Trouble Breathing Tumors Sarcoidosis Lymphoma Mass Hair Loss Rash Knots Joint Pain
ABOUT THIS CASE FILE
Help! I have no quality of life... I was hurt at work 3 years ago. When psyical therapy was not helping I had a CT scan. They noticed a large Mass that is pressed between my adrenal gland, lung and spleen that cannot be removed. I have had biopsies done. I have had pneumonia several times that has put me in the hospital many times. I have also been diagnosed with sarcoidosis and they think that I have non Hodgkin's lymphoma. They have now found a tumor in my ovary that can only be removed if I lose weight for them to do a special robotic surgery. I have not been able to lose any weight even though I barely eat and stay nautious. I throw up quite often and stay nautious all day every day. I am not able to exercise. I have so many problems breathing, my chest always hurts, Horrible Joint Pain All Over, Extreme Inflammation All Over, Chronic Fatigue, Fibromyalgia, Sarcoidosis, Rheumatoid and Psoriatic Arthritis, Squamous Cell Cancer, Extreme Pain all over my entire body, Granulomas all over Entire my body, Hair loss, Joint Pain, Many Different Low blood levels and Auto-Immune Disease. I have knots and rashes that come up in different areas every day. My cancer doctor actually told me that there is nothing more he knows to do for me. We have been to many doctors and no one can give us a full diagnosis or tell us what we need to do to help. I have become extremely allergic to prednisone. I have tried acthar gel, imuran and many other medications that have not worked. I have not worked in almost 3 years and have not been able to leave the house because I have Extreme Chronic Fatigue and Pain, a VERY Low Immune System and cannot breathe very well. I have no quality of life. I have become extremely depressed and full of anxiety. My Girlfriend has to help me with everything and it has also affected her tremendously. She is very Supportive and Loving. No one seems to understand... EVERYTHING they have tried has not worked and has affected another problem inside of my body VERY Negativly. We would LOVE to have a KNOWLEDGEABLE team of doctors to help us find an answer because we have been spinning our wheels for 3 years and we have yet to find one Dr that CARES or KNOWS what to do.