- CASE FILE
Auto immune/blood disorder that is treated reactively instead of proactively
ABOUT THIS CASE FILE
I have been to several drs and facilities over the past 8 years. They call me a mystery. I have some sort of blood disorder that causes superficial blood clots even though I'm on blood thinners which appear on my skin as a shiny bruise. Within 2-3 days the bruise turns neurotic tissue and deep wound. I have already lost my left leg due to not being able to heal the wound and the pain was just too much. When my right leg started in the same way I went to the VA and thanks to them we were able to save my right leg with the use of stem cell therapy. Before long I had wounds on my arms. Almost lost a thumb. Now it's on my ear and my wife is concerned that it will effect my brain because these wounds tend to get deep. I was treated with plasma pheresies, did 4 months of chemo for possible multiple myeloma. I also have a very low platelet count since losing my left leg. I am in chronic pain. I just want a diagnosis. I don't even care if it's terminal at least I would know what it is. During this time I have had issues with my kidneys and extremely high blood pressure.