- CASE FILE
a 34-year-old wife and mother of 3, who's life is plagued and robbed by widespread pain, spasms, dizziness, tinnitus, and much much more...
ABOUT THIS CASE FILE
I am seeking help because doctors have either dismissed my claims of symptoms or not cared. This has been an ongoing battle for 8 years beginning with my the left side of my back, left hip, knee, and foot. After a poorly done epidural for a cesarean in 2009, I was left with pain on the left side of my back, hip. Last year, the pain began to radiate further into my left knee and foot. It is a mix of shoot pains, radiating pain, and numbness and tingly. My doctor did x-rays on my hip and knee but never my spine. Currently, it is difficult to walk on at times but not all the times so I bought a cane. My leg/hip gets tired if I have to walk too far or for too long. My doctor at that time try steroid injections in my hip and sent me out for physical therapy before saying there was nothing else he could do. In 2011, during my third and final pregnancy, I was in a car accident that exacerbated the hip injury and during the delivery of my baby, there was an audible pop in the pubic bone. I had a hysterectomy that same year due to pain fibroids that had been plaguing me since high school. In 2013, after a really bad cold and sinus infection, I was put on antibiotics (Cipro and when that didn't clear it up, Avelox) and steroids repeatedly over the course of 2 years. I was diagnosed with non-allergic vasomotor rhinitis. I was prescribed ipratropium nasal spray and an over-the-counter decongestant. My lungs never really recovered, I kept coughing so severely I'd vomit, I couldn't lay on my back and was told it was just bronchitis. After three months of that, I was hospitalized with hypoxia put on high doses of steroids and antibiotics (Cipro and Avelox) and diagnosed with non-allergic asthma and put on Advair and ProAir. Advair caused severe throat burning so I was switched to Symbicort. All of the steroids caused rapid weight gain that I still struggle with. Beginning towards the end of 2016, I started having muscle spasms in my upper back and neck that seemed to cause chronic migraines. I've had migraines since my youth but began having 24 days worth of migraines a month. I started having blurred vision, focusing problems and extreme eye sensitivity. My vision isnt bad by any means but changed every year and I began having ocular migraines as well. We've tried every type of lens combination to ease the eye strain, sensitivity, and pain but nothing seemed to help. The spasms continued in the rest of my body. My shoulders and quads started cramping for hours to days at a time. Then twitches all over my body and this internal vibration sensation. My face, mouth, tongue, legs, arms, even fingers would twitch uncontrollably. 2017 started with widespread pain and fatigue. I would be walking home from taking my kids to the bus stop and my entire body would ache with fatigue and sometimes I didn't know how I made it home because I could barely keep my eyes open as I dragged my feet. I had to stop walking them to the bus because I'd sleep the entire day even after a full night's sleep. This helped somewhat but I couldn't get nearly as many household chores done as I was used to. I was attending school online and struggled with getting my work in on time due to fatigue, migraines, blurred vision and pain. The pain would come, often in the evening but any time of day. Shooting pain in my back, stomach, arms, everywhere. It would come randomly, it still comes randomly. The sensations of sunburns, searing cuts, lightning-quick pain that stole my breath and deep radiating pain would steal my day. Sometimes it's like there is a disconnect between my brain and my mouth. At times, I struggle with saying the right words, even if I'm thinking of them. Other times I can't think of the words to say even though I know them. I can also get confused easily when people are speaking to me as if the words aren't making sense. Later I will understand them but not always right away. I haven't been able to work and no one seems to believe anything is wrong with me. I had to extend the time it took to finish my degree because I couldn't handle more than one class at a time. I spent 2018 going to doctors for testing and hoping for a diagnosis and walked out with bills and no help. My neurologist sent me to a pain special and physical therapy. He did an MRA and MRI of my head, EEG, EMG of both legs and both arms, and they were all negative. I am sensitive to medication and have awful side effects and currently only take necessary medications such as my asthma inhaler and eye drops for glaucoma. Nothing else so I just basically deal with the pain every single day, all day long. Exercise is difficult as I can take 3-4 days to recover from even 15 minutes of exercise. I don't sleep well anymore due to the pain in my hip, leg, and knee. 2019 I was diagnosed with normal-tension glaucoma by my eye doctor as she's been the only doctor to take anything I say seriously. Much of my migraine problems affect my left eye and left side of my head and my glaucoma affects only my right eye. I don't know if it has anything to do with the other symptoms or not. I've also recently noticed that I struggle to bear my own weight on my left arm and hand. I can't pick things up and hold them but sometimes I drop things easily if they're in my left hand. My left arm behind the wrist on the back/top side becomes swollen and painful, sometimes also lumpy feeling and the lumps hurt. They feel like trigger points but different. Currently, I am in between doctors because they all have given up on me and struggle to get through most days. I have to pace myself every day. I recently graduated from college and still haven't been able to work because I struggle with fatigue, and pain still every day. I'm exhausted, frustrated and it's expensive to go from doctor to doctor and disheartening when they don't believe you're in pain because you stopped going and just dealt with the pain because it's so expensive. Or when you don't go to the ER for pain relief from medications. I just want answers.