- CASE FILE
My wife has been chronically ill for a couple years. She has multiple organs involved and is still a mystery to all her Dr’s.
ABOUT THIS CASE FILE
Diagnosed with Relapsing polychondritis, pulmonary hypertension, restrictive cardiomyopathy, tracheo bronchial mylasia. My wife was incredibly active until 5 years ago she developed atrial tach, a dry severe cough and frequently passed out. 2 years ago she was diagnosed with relapsing poly chondrites a very rare auto immune disease. Since the diagnosis she has progressively and rapidly gotten worse. She’s on oxygen, bipap, high dose prednisone and remicaid infusions and multiple other medications for her heart, gastric and renal issues and opioids for the severe pain from Costochondritis and compression fractures. She sees several Dr’s locally and also at National institute of health. We seen slight improvements of some stuff, but, something is still being missed and her Dr’s are still baffled thinking she should be better. Her quality of life is non existent, she passes out several times a day, has gained 80 pounds, can barely walk to and from the bathroom on her own. She’s on oxygen and wears bipap all night and multiple times during the day just to breathe. We both are respiratory therapists, but she’s disabled do to this condition.