- CASE FILE
Every since I had an appendectomy and my gallbladder removed in October '10 I have had extreme fatigue and memory loss.
ABOUT THIS CASE FILE
The following is my medical history:
I was diagnosed with a rare bone marrow failure disease known as Diamond Blackfan Anemia (DBA) when I was an infant. That happened between December 28, 1974 and November 7, 1975. I was hospitalized with chronic diarrhea, congestive heart failure and a fever. During the time I was in the hospital I was diagnosed with the DBA and put on Prednisone. The only two treatments are Prednisone or chronic blood transfusions and the transfusions can lead to iron buildup in the liver. Which then you have to either take a pill or do chelation to remove the iron. I was put on a trial of Prednisone to see if my bone marrow would start producing red blood cells and it worked. I was on it for over 25 years when I went into remission. As I've gotten older I'm starting to have more medical issues. In 2001 I was diagnosed with Major Depressive Disorder and put on Zoloft. In 2002 I was diagnosed with Facet Syndrome (back issue) and osteoarthritis in my spine. I went through PT and it helped with the pain. In October 2003 I was diagnosed with Hyperparathyroidism and put on 50,000 iu of Vitamin D2 once a week. Then in August of 2010 I went through an upper endoscopy and a colonoscopy. During the colonoscopy the doctor found a tumor on my appendix. It was benign and removed with an appendectomy in October of that year. Also during the surgery my gallbladder was removed. Ever since then I've been extremely tired to the point where I want to fall asleep everywhere I go and have been having bad memory problems. Due to that my PCP at the time (she has retired since then) ordered a sleep test and in 2011 I was diagnosed with Sleep Apnea and put on a CPAP machine. The machine helped with the quality of my sleep. However it didn't help with the extreme fatigue. Also in the last two years I have been diagnosed with osteoarthritis in my hips, in my left thumb, in my toes, in my knees and in my neck. I was also diagnosed with lumbar stenosis and two compression fractures in the thoracic area of my spine. Then in June of this year I started having electric-shock like pain go from my neck to around my ear in the left side of my head. I had an appointment with my PCP who thinks it is something called Occipital Neuralgia (the occipital nerves become inflamed and start sending pain signals to the brain) and she referred me to a neurologist. The neurologist agreed with her and referred me to three different doctors who work in their pain clinic. I saw one Tuesday, Oct. 8 and unfortunately she was of no help. By what I understand of this the only way to 100% diagnose this is to get steroid injections in the neck by the occipital nerves or in them. If the pain goes away after the injections, then you have your diagnosis. Due to this I thought I was going to get a nerve block to diagnose the Occipital Neuralgia, but the doctor refused to do the injection. I don't think she understood why I was there. All she wanted to do was give me advice on how to deal with the pain and I was there for a diagnosis. She said the injections are bandaids. Instead she referred me to PT which I can't afford and changed meds. I've been on Gabapentin (an antiepileptic and nerve pain med) since my appointment in July with my PCP. The pain doctor wants me to take Amitriptyline (tricyclic antidepressant and pain med) instead of the Gabapentin. Unfortunately the Gabapentin is causing weight gain and irritability and the Amitriptyline caused horrendous pain in my left thigh, so I've stopped them both. The bad thing about not taking the Gabapentin anymore is I'm back to being extremely tired all day long. For some reason I wasn't having that tiredness while I was on it. I'm going to follow up with the neurologist about that. In the meantime would anyone know what this could be? Thank you for your help and your responses. Take care.