- CASE FILE
Six years of increasing amount of illness and pain even after numerous tests and surgeries.
ABOUT THIS CASE FILE
Have had fibrocystic breasts for years. Then It started with ovarian cysts, had surgery to remove tubes and ovaries. Got Crohn’s disease then IBS. Had bone spurs removed from feet and hands. Swollen lymph nodes in neck and peri portal. Have ocular neuritis cervical spinal stenosis ankolysing spondylitis white matter brain disease suspected afib and poems disease. I have splenomegaly and fatty liver disease and pancreatic cysts as well Have had also had bone marrow biopsy and peri portal lymph node excision. Normal blood tests are almost always normal with the exception of swelling markers. Special blood tests are not normal vegf at 1880 etc. free light chains and many ca tests always come back positive but at a low number so no one can determine a true diagnosis. One major marker missing is the monoclonal spike. Even my bone marrow showed mild plasmacytosis. I have neuropathy loss of appetite Osgood Schlatter hiatal hernia white nails on and off insomnia. Loss of most teeth and multiple drug allergies as well as food environmental. This has been going on for six years. I have been told by a doctor to “stop going doctors they always find something else wrong” and I have also been told that I am “just unlucky”. I am tired of living in pain and my ability to walk and use my hands is getting worse. I can’t reach for things open jars etc. I am supporting my family and life is so hard.