- CASE FILE
I have heart rates as low as 30 and as high as 190 from standing up. I sleep up to 20 hours a day. I’ve lost 30 pounds in 3 months.
ABOUT THIS CASE FILE
I have Ehlers Danlos syndrome and have recently had worsening of my symptoms. Whenever I stand up my heart rate goes anywhere from 30 to 190. I sleep up to 20 hours a day. I’ve lost 30 pounds without trying. I also have neck pain and cracking when I turn my head. My labs are normal. My blood pressure is normal. My Brain MRA was normal. My sleep study was normal. My echocardiogram was normal. The cardiologist wants to put in a pacemaker to control my heart rate but I’m 35 and unsure