- CASE FILE
I have been diagnosed with post traumatic syringomyelia. It is rare and doctors do not always have answers. I need your help!
ABOUT THIS CASE FILE
I had been going to the doctor for back pain since a bad car accident. For years I was sent to pain management for infections, which seemed like a temporary fix. Finally I was fed up and told my primary care I would not do anymore until we got some imaging. Received an MRI of spine in which they found what is called a syrinx(cyst inside the spinal cord). Was referred off to a nuero surgeon who did a laminectomy and placed a shunt into my spinal cord. When I woke from surgery my entire right leg was numb. I had to do extensive therapy but got to a place where I can walk again but I have to manage closely. Recently I have been having the numbness spread into the groin and my left leg. Doctors are weary of what to do or how to manage at this point without causing more damage. From what I am told this is rare and they have not dealt with it as often to know how to manage. Always hearing uncertainty is frustrating and wondering if there is any doctors that specialize in treating this that would have more answers on how to manage since I am only in my 30’s.