- CASE FILE
Coats Disease took my son's vision in his right eye. Caused Neovascular Glaucoma & Total Retina Detachment. No known cause or cure.
ABOUT THIS CASE FILE
My son was diagnosed, at the age of 9 (11 now,) with an extrememly rare conditon called Coats Disease. Which is leaky blood vessels formed abnormally in the back of the eye. This condition had already caused Neovascular Glaucoma and complete retinal detachment. There were no signs or symptoms leading up to diagnosis. He hasn't had any surgeries, laser therapy or cryo treatments because the eye was already "too far gone." We learned at the same time, this disease had already completely taken all vision in his right eye. There is no known cause, cure, or treatment. He was originally placed on 3 different eye drops (Atropine, Timolol, Prednisolone) 2x/day to help with pressure and pain. They say there is nothing they can do and he will never have vision back in that eye. All we can do is manage his pain & if it gets to be too much, enucleation (removal of the eye,) is the next step. At our most recent appointment, we were informed the doctor is concerned of possible Glaucoma starting in his left eye. His current vision in his left eye is 20/15. We'll see a Glaucoma Specialist August 15th, but our retina specialist stated "it's very uncommon to see glaucoma forming in a child this age." Which has obviously caused me great concern. My son is an amazing athlete and his dreams all involve sports. I'm having trouble understanding, the obvious, why? But more importantly, how is there absolutely nothing that can be done? This disease is so rare, that hardly any research has been done & very few people working towards answers and a cure.
(Picture where most noticeable is when taking using the flash.)