- CASE FILE
A little girl needs her Mommy back...Complex blood work has Dr's stumped. Tossed from Dr. to Dr. with little answers.
ABOUT THIS CASE FILE
My 4 year old little girl needs her Mommy back...I've been sick for over 3 years now, tossed from Dr to Dr, none knows what to do with me. I have Hypogammaglobulinemia, an Immune Deficiency Disorder that causes me to be sick all the time. Usually this order is associated with CVID which I do not have. They are struggling on treating me with IVIG, plasma infusions, and I have received treatment kind of off and on.
Also have extremely low testosterone, and am being treated with t-pellets and thyroid meds. Show possible thyroid autoimmune, lower end WBC, elevated MCH continually, MCHC elevated 1st time, Automated Absolute Monos High 1st time, and extremely elevated B12. No one can figure out the B12. Not sure if I have a condition that is causing it or if my body is not absorbing and using it.
Have been diagnosed with multiple conditions at this point, some I think are reaching and not truth. Psoriatic arthritis, Hypogammaglobulinemia, Hormone and Thyroid Issues, GERD, IBS... I have extreme fatigue, I'm sick all the time (almost constantly on antibiotics), bone pain, sleep problems, night sweats, hand feet and face swelling, numb arms and hands at night, pure exhaustion and weakness, no stamina, no sex drive. I have been tested for cancers, Mono, Lyme, Lupus, Hepatitis, HIV, and multiple other things, all negative results.
This has effected my entire life, I went from being a driven business professional and business owner to not being able to work at all. My daughter is growing up with a mommy that is sick all the time and cant play with her. I keep fighting and perusing answers, I'm not giving up.