- CASE FILE
Pain, swelling and stiffness all over body, not just joints, including nerve pain (sometimes feels like nerves itch).
ABOUT THIS CASE FILE
When I was 12 I started losing muscle mass and my hands couldn't straighten or bend anymore and cysts developed on every knuckle and elbow and I had rashes that developed. I went from doctor to doctor and finally after 2 years somebody said we don't know and sent me to children's hospital of Philadelphia. They diagnosed me with dermatomyositis and gave me Prednisone and methotrexate. I went into remission but it came back a few years later. Because I was over 18 at that point I had to go to university of Penn and they said rheumatoid arthritis and gave me medicine again. I lost that remission a few couple years later and went back to Doctor who kept saying I don't know. He gave me medicine again and I went into remission again until a couple years ago where I lost it and can't seem to go into remission again. I have been told I have fibromyalgia, got treated for it. Ive had migraines and have medicine for that. The newest rheumatologist said he thinks it's actually dysautonomia and is sending me to yet another doctor. My entire body is swollen, including calves and forearms and my entire body hurts and is stiff.