- CASE FILE
debilitating nerve pain, swelling, numbness, tingling in left arm, shoulder + neck. headaches.
ABOUT THIS CASE FILE
I was an opioid patient for more than 10 years for Hemangioblastoma scattered throighout my spine, Early diagnosis of disc degenerative disease. Then the crisis with opioids got bad. My pain Dr quit and moved. My PCP took me off of the opioid fast. went from 300mg Morphine ER a day to 120mg a day in a little over a month and my body went haywire. I got very sick with severe withdrawls. Plus the pain of the tumors and my neck started getting uncontrollable. Then the rollercoaster ride with opioids started. between pain drs and my pcp I was on then off then on again. Now, I have afib, and gastroperesis, cronic obstipation, nausea, vomiting, no hunger, extreme weight loss, cannot eat solid food anymore. My heart races along with throwing painful PVC's constantly, my blood pressure cannot make up it's mind where to go. Don't get me started on the stomach issues. It started with nausea and vomiting daily and now my stomach and intestines do not want to work. I have been told that I am pre-diabetic, my liver enzymes have been elevated with no real cause. The doctors only seemed to get interested when the swelling in my left shoulder started. however, now that the scans that were done show nothing but thyroid nodules, I get the same old answer. Scan it again in a year.
I have had MRIs, CT scans, x-rays, colonoscopy, and they went down my throat at the same time. they know something is not right with my body, but everyone seems to be washing their hands of me. I have told them that this is getting worse and it has absolutely nothing to do with me wanting to take opioids, In fact, I told all of my drs that I do not want to take them anymore, yet I am now back on Morphine again along with gabapentin, hydroxyzine and verapamil for my afib.
My mind has become mush with headaches and just being exhausted. I cannot think straight anymore. I have problems finding my words and my short term memory kind of sucks right now. My eyesight keep getting worse then all of a sudden it is better. My balance and coordination is aweful. I have fallen and broken my elbow and almost chopped off my thumb from falls. I am stessed to my breaking point and this has taken a huge toll on my family. My husband is a truckdriver and I am home alone taking care of 4 teenage girls. I have gotten to the point where I never leave my room u less it is to make supper or run a super quick errand because I cannot be out in the heat for more than about 10 to 20 minutes because I cannot sweat right and I cannot breath. I get dizzy and faint if I stand for too long. However, if I sit for to long I get more nerve pain and pressure pain in my ;left shoulder and my heart starts racing and throwing PVCs. I am sorry if all of this seems erratic. I am sure that it saounds that way because I feel that way.