- CASE FILE
I am 23, I was born with multiple hip deformities, have had 5 hip surgeries, and have been diagnosed with CRPS.
ABOUT THIS CASE FILE
I have several different hip deformities (from birth) and have had five reconstructive hip surgeries. Although I grew up in pain the doctors always said it was growing pain, and therefore my deformities weren't found until my Junior year in high school, and I've been undergoing surgeries ever since. After my first big surgery called a periacetabular osteotomy to correct hip dysplasia in one of my hips, I was bed ridden for several months, then in a walker for several more, then on crutches for awhile thereafter. I did all of the therapy and took good care of my body during the recovery process but didn't heal right. A few surgeries later when I was experiencing unexplained heightened pain, weird bruising that would come and go within a day or two, temperature changes between limbs, as well as tingly-stabbing knife like pain upon normal touch my hips and thighs I was diagnosed with CRPS (Chronic Regional Pain Syndrome, used to be known as RSD). That's when my surgeon wrote me off as a patient and didn't want anything to do with me anymore because he didn't want to be responsible for making anything worse. I know why it happened, an injury to my peripheral nervous system that didn't heal from surgery. But apparently there is no cure. I've tried multiple different physical therapy methods, I stay very active to keep it from progressing and I stay very thin as to not aggravate the problem, I've tried chiropractic, various medications, a series of 8 very painful spinal injections to try and desensitize the nerve, I've tried diet change (I have my bachelors degree in exercise science and am currently a masters student in a clinical nutrition program), pain management, and many different types of numbing creams. It would be nice to actually find a cure, because I don't believe there is no way to fix a peripheral nervous system disorder.