- CASE FILE
Been to Mayo, Shands, Tampa General, and over 100 specialists and doctors. In Mayo's research program hoping for help. Chronic pain sufferer
ABOUT THIS CASE FILE
30+ years of chronic pain. Severe migraine type headaches that are not helped with over the counter pain meds or migraine medication. Had a peripheral nerve stimulator implanted but it was removed due to lead and wire complications.
Extreme leg pain and leg weakness so bad I can only walk 15 minutes before they give out and I can't walk. Can't stand on toes, run, or jump. Been diagnosed with Hyperostosis by Mayo clinic. They don't know how to stop it or treat it and want me to go to Mayo Rochester MN. I've had 4 surgeries to remove excess bone. 2 cornoidectomies and 2 ribs removed on right side. Bone bumps throughout body. Many kidney stones. Right vestibular nerve section done due to dizziness. Diagnosed with severe fibromyalgia, polyneuropathy, sarcoidosis, degenerative osteoarthritis. Splotchy skin and skin that doesn't flake off. Blurred and double vision along with white dancing lines and fireworks in vision. Been on pain meds for almost half my life and they don't even control the pain as much as I would like. Most tests like EEGs, eye tests, or diagnostic scans come back normal. Been tested for MS, MD, Lupus and many others. Tried botox, imitrex, and emgality for headaches with no relief. Dry mouth and throat.Taken too many meds to count, including medical marijuana, which made me worse. Only 47 years old. Disabled for 15 years, can't drive. Don't smoke or drink alcohol or caffeine. Vegetarian. Only eat 1 meal a day. Bowel movement every 4-5 days.