- CASE FILE
Constant pain, loss of sensations, neuropathic pain, swelling & inflammation of all joints especially hands, wrists, feet. Discoloration of
ABOUT THIS CASE FILE
As a toddler, i experienced an illness/issue during which it seemed that i was in such pain everywhere, i could not move, would not even try to walk or do things i was capable of doing, nor would i allow anyone to touch me, because it ...
As a toddler, i experienced an illness/issue during which it seemed that i was in such pain everywhere, i could not move, would not even try to walk or do things i was capable of doing, nor would i allow anyone to touch me, because it all was so painful. The doctor was unable to determine a cause, and it resolved on its own in a couple of weeks. Aa far back as i have memories, i was always depressed and sleepy. I never had the inertia or stamina to keep up with friends' play. Sometimes i got transient "weird pains" in my legs or arms, muscular & skeletal aching, which required my muscles to be "smushed" to ease the pain. Though infrequent, these have never completely stopped. By middle school, i was sleeping in most school classes, church, all weekend, and having suicidal thoughts. I also began having pain in my hips on & off. At 23yo i was diagnosed formally with narcolepsy and major depression. Being above average intelligence, i managed to compensate for my issues, keeping them hidden in order to finish college and maintain employment. Over the next 30 years, symptoms gradually worsened & increased. The pain in my hips was ultimately diagnosed as degenerative joint disease, which is evident in basically all major joints & cervical vertebrae. I had total left hip replacement in June 2016, which provided stability to walk on it, but created new/other pains which have not stopped, and left the lateral & anterior surface of my thigh numb. I now need my right hip replaced, but am afraid of a bad outcome plus lack finances & the necessary time off to have it done. The neuropathy began in my toes, probably in my teens, and has now spread through my feet and partially up my calves. The bottoms of my feet hurt so bad i cannot get through a normal day of walking/mobility without major pain & limping, and within a few hours of being on my feet, my ankles & feet swell and the skin become bright cherry red-purple; otherwise, when rested, the coloration is cadaverish pale cyanotic bluish tint and spots of dead-looking opaque whitish flesh-tone. My feet are always either feverishly hot or ice-block cold with no in betweens. The pressure on my heels from them resting on my mattress when I am lying in bed on my back causes unbearable pain. The only ways I've come up with to suspend my feet above the mattress surface to prevent contact causes increased pain/issues with my knees and even worse with my hips. I cannot lye on either side due to hip pain including excruciating trochlear bursitis & fascitis, nor on my stomach due to neck & back pain and the inability to turn my neck sufficiently for an extended time period. My hands, fingers, wrists & forearms are in constant pain, stiff, swollen, aching, contracting into a fetal-like claw, requiring repeated stretching exercises throughout every day and limiting fine motor use of my hands. Because i work professionally, i know i am nearing the end of my effective productivity and thus, employability, but am too young to retire, and have no doctors that understand enough to consider me disabled. However, of my last 4 jobs (current under-employment included), i have been discharged due to inability to perform required duties or resigned due to complete & total mental breakdown from hostile & abusive work environment & management. I am barely able to keep up at my current job, and expect to be let go as soon as they can replace me. I am miserable enough that every day is a decision between forcing myself to go in spite of great difficulty and anticipated pain or just killing myself to end it all. So far, I've managed to go, but usually end up late. My brain fails to process the passage of time normally and i am constantly being shocked by the time. My thoughts are incessant and i have so many more ideas than i can possibly act on, i am simply overwhelmed, undecided, and useless. I have seen internal medicine & family practice doctors, rheumatologists, orthopedists, neurologists, ENTs, psychiatrists, psychologists, and gynecologist. I admit i fail to follow through fairly often on their directives because i do not have the ability to manage insurance, appointments, time off of work, payments, trips to houston, going for labwork, keeping prescriptions filled, etc, etc. Its just way too much especially when part of my condition involves inability to stay awake, get dressed, answer the phone or make calls, DO things. I just cant keep up.