- CASE FILE
Since 2011,I have developed multiple nerve compression syndromes, and have over a dozen diagnoses that "are just coincidences" and unrelated
ABOUT THIS CASE FILE
Before 2011, I had infrequent migraines, and unexplained syncope. I had my gallbladder removed since I developed gallstones while pregnant with my first born, and I had problems with spraining and injuring joints, but that was about the extent of my medical history. I had a pituitary cyst removed in 2011, after giving birth to my daughter because my cyst grew quickly and gave me tunnel vision. I had surgery in Germany in 2011, due to my husband being stationed in Germany. I was living in Germany with my 2 yr old and 3 mo old while my husband was deployed, when I started going blind. Red Cross brought my husband back from Afghanistan just in time for me to get surgery. Since 2011, I have had many health issues, many diagnoses, and many unexplained symptoms. I have been diagnosed with multiple nerve compression syndromes including lumbar spinal stenosis, bilateral ulnar neuropathy, bilateral carpal tunnel, occipital neuralgia, and trigeminal neuralgia. I have chronic migraines, and I spend most of my days with vertigo, nausea, double vision, and blurred vision. I have had a headache everyday for 8 years. I also have nerve "attacks" that hit my kidneys, back spasms, and due to all of my medications I have delayed gastric emptying, which causes severe stomach, intestinal spasms, and cyclic vomiting syndrome. I have unexplained syncope, which they speculate is neurological, but to be on the safe side, I have had a cardiologist do a work up and they found I have intermittent tachycardia, so I now have a medtronic heart monitor implanted. There are days my muscles don't allow my body to move well, if at all. Some days, there is so much pain, and stiffness that I have to use assistance to walk. AFTER my brain surgery to restore my sight, I had about of year of clarity before I lost all but 4% of my vision. I was legally blind for over a year, but doctors assured me that my pituitary cyst that was returning was not pressing on my optic chiasm this time, so there was no reason for my vision loss. I had to give up my job as a pharmacy technician, because two things people don't really want blind people messing with are meds and money. Then one day, my vision started opening up again. We have no idea why. I still have no right peripheral vision, but that was something I could work with. To top it all off, I have kidney stones 24/7, and a couple cysts in my kidneys. I also have triglycerides that are over 2500, often over 3000, and have not responded to numerous medications and I have a limited diet due to my gastric issues. My prolactin levels have always been in normal range or barely elevated, but I have also lactated for 8 years, since my daughter was born. Doctors haven't been able to tell me why that is either. They tell me it's because of my pituitary cyst, which would be the usual thought, but hormone levels are not an issue in my case, which doesn't explain why I lactate so much. I have L4 and L5 issues, degenerative disc disease, and arthritis in my S1 joints. Among the other symptoms I have are memory and concentration issues, finding the right words to use, tingling and crawling sensations, and anxiety. With all these issues, who wouldn't have anxiety? Everything else has been lumped into the diagnosis of Fibromyalgia. Doctors tell me all of these things are just coincidence and unrelated, even though I have developed all of this in the last 8 years.