- CASE FILE
I look great on the outside. It's the inside that isn't working right anymore. Please help me.
ABOUT THIS CASE FILE
The neurologist for the Department of Social Security was the one that told me I had Multiple Sclerosis and that I needed a neurologist. The psychologist that they sent me to told me that Social Security would deny me because I "didn't fit into one of their boxes" and that I would need to appeal it so that a medical doctor would look at my file. After being denied I went to an attorney in Dallas. Three weeks afterward I had my back pay without a diagnosis. I think I have only had three neurologists since 1999 that believed that I had MS. Whatever it is I have, I am 4th generation. UT Southwest wanted me to go to Houston at my own expense for DNA testing. That wasn't going to happen. None of my family has been very close so details are sketchy. What I do know is that my great grandmother had severe headaches. My grandfather had problems walking (but I was very small when he died). My father was in great health but the doctor never could find out why he had so much trouble with weakness and heaviness in his legs when he walked much. My father's only sister went down fast. She was fine and then she just couldn't get up or walk. She passed away within a few short months. The autopsy stated that she died from Guillain-Barre Syndrome. For myself, I spent 4-6 months every year in a wheelchair in the state of Texas. In and out of physical therapy because I have a bit of a "Pit Bull" attitude. Speech therapy, swallow therapy, crazy testing. Told I have had BPV by a neurologist in Texas and then told but UT Southwest my vertigo had nothing to do with my ears. Nystagmus was so bad I spent a month with a neck brace on sleeping in a recliner because every time I moved my head I vomited. My story just keeps going on and on. I have had optic neuritis, a bezoar, it takes twice as long for my stomach to empty, I have a spastic colon (if you could fix my stomach I think I could survive the rest, lol). I was told I would never walk again. Then I found a woman who was a Master of Chinese Medicine. Four years of acupuncture got me out of the wheelchair. Moving to Pennsylvania has put me into a cooler environment that has kept me out of it. But now, after 10 years without acupuncture things are coming back. I am losing my eyesight, The neuropathy in my legs is driving me crazy at night and nothing is helping. Like I said the stomach problems are the worse. The pain, nausea and watery diarrhea. There isn't anyone in my area trained high enough in Chinese Medicine to do me any good. Like I mentioned, I don't even think my neurologist thinks i have MS. I have White Matter lesions. Clear spinal taps. EVP test will show MS so basically I am atypical. Personally, I don't think I have MS I believe that there is something genetically wrong with me and I am afraid for my children and grandchildren. I want to be able to keep painting. As it is I have had to stop.