- CASE FILE
hypothyroidism, eosinophilic esophagitis (currently in remission), lymphedema & chronic fatigue . All tests normal. Active lifestyle. Help!
ABOUT THIS CASE FILE
My medical struggles began at a very young age. I got sick frequently with strep throat, bronchitis, and even scarlet fever. I was diagnosed with hypothyroidism at 12. Struggled with food allergies which began around that age and was diagnosed with Eosinophilic Esophagitis (a rare disease) in my late 20s. The allergies & EOE caused frequent choking episodes and anaphylaxis which caused furrowing in my esophagus. After extensive allergy testing and strict elimination dieting I have been able to get my EOE into remission. I have had 2 separate episodes of kidney stones, one at age 17, one at age 20. I have had 2 knee arthroscopies relating to osteochondritis dissecans. I am an active person (3-4 days/wk workouts/ background in fitness & dietetics) living a healthful lifestyle but constantly struggle with fatigue and lymphedema. I worked in a restaurant for 7 years, working long hours while standing on my feet. My lymphedema over time became more and more of a struggle. I followed through with every single medical recommendation that was given to me to be stopped at dead ends everywhere I turn. I've seen every specialist recommended to me and had all testing come back normal- no autoimmune markers & no apparent vein problems. I have tried medications, coming off birth control, dietary changes, ointments, acupuncture... and the list goes on. After 7 years of being on my feet in a restaurant I changed career paths as a last resort, I took a desk job and after being in the position for 1 year my lymphedema & fatigue have only gotten worse. I've tried keeping diaries and cannot find any correlations that would help narrow down what might be going on. I'm looking for help because I've put my life on hold for so many years. I'm in my mid 30s and can't put my family planning dreams on hold for much longer while I try to heal myself. My body is screaming that something is wrong and I'm listening. Time is ticking and I just want to live optimally. Help me find the answers I'm looking for.