- CASE FILE
I have been struggling with flares of joint pain for years that just gets worse. Along with a myriad of other "idiopathic" problems.
ABOUT THIS CASE FILE
I have had unspecified join pain for years. The first Rheumatologist I went to made me cry. She wrote me off as a a mental disorder since she could not diagnose me. I waited several years to follow up again with another Rheumotoalogist as my symptoms got more serious. I started having flares that would come and go with no reason and at all varying in length and intensity. Despite my new doctor being very caring and ordering all sorts of test including blood work, ultrasounds, body scans, x-rays, an emg multiple visits during a "flare". These flares bring on not only joint pain but incredible sensitivity to touch. The best way I can describe it is that window of time right when you are starting a fever for the flu, but much worse. I typically haven no fever, never raises over 99.1 or so. I constantly get sick all winter and my immunolgobins are fine. I get plenty of rest drink water. I was working out and was in the best shape of my life- I even completed a Spartan run. I am finding lately that I am having more debilitating pain between flares including twisting pain in both feet, wrist, hands, knees and sometime shoulder. It feels sometimes like my foot or ankle is breaking as I walk down stairs. I do have Hashimotos, but my thryoid levels are within range. I have had an elevated CRP and ANA, but all other test are clean including RA and Lyme. I was diagnosed with IBS and gastritis as I had many flares of pain in my lower right and upper right quadrant. I have had ultrasounds, catscans, upper GI, Endoscopies , and Colonoscopies. I have granuloma annulare all over my body, confirmed with two dermatologist and two biopsies. I have PCOS. My asthma has gotten worse over the years and holds me back from heavy cardio. I know have an at home neubulizer for to treat the multiple URIs I get every year. I most recently started have heart palpitations and increased heart rate. I waiting to get my 24 hour holster and an echo cardiogram.
I am really struggling right now, I want to be able to live my life to the fullest. This pain and suffering is taking away from family time, Affects the job I love. I want to get off the couch and be the best me!!!!